Use of administrative hospital registry data and a civil registry to measure survival and other outcomes after cancer
نویسندگان
چکیده
For many decades, cancer registries have been a cornerstone in monitoring cancer occurrence in different populations. Cancer registries in the Nordic countries are characterized by a high level of completeness and excellent data quality. 1 Cancer diagnoses are often validated through several procedures, with documentation of clinical evidence for the diagnosis. Cancer registries have proven very useful in monitoring cancer incidence, contributing significantly to our understanding of its origin and development. Some registries also have been used to monitor cancer survival at the population level. 1 Since the early 1990s there has been an increasing demand to measure the performance of health care systems in treating a number of diseases, including cancer. 2 " Outcomes " refers to the results of the health care delivery process. 3 For cancer treatments, the main outcomes are: 1) clinical status, including survival; 2) functional status; and 3) consumer satisfaction. Five-year overall survival has long constituted the main clinical outcome in cancer research. 2 The aim of any system designed to monitor the performance of a health care system is to help clinicians and health care administrators detect suboptimal clinical practices and to guide clinical decisions and policy, with the overall goal of achieving measurable improvements in health care. 3 An effective monitoring system must fulfill the following requirements: 4 1. Data must be continuously updated. 2. Data must be complete and of adequate quality. 3. Data must be accessible on a regional level, and preferably also on a hospital level. 4. Data must contain relevant clinical endpoints. 5. Data must be collected continuously in clinical practice. Cancer registries often are limited in these respects. One problem is lag time in data delivery (in some cases several years). Another is that information on treatment is restricted to that available at the time of diagnosis. As well, some registries do not provide linkage to mortality data. Finally, data collected by cancer registries are not routinely returned to clinical departments, limiting the feedback received by the specific health care delivery points. Many cancer registries thus provide only an incomplete view of the clinical course of cancers. In this Supplement to Clinical Epidemiology, current survival data after cancer treatment in Denmark are reported on a regional level. The analyses were based on administrative hospital registry data linked to a civil registry, both of which are available
منابع مشابه
Does ethnicity affect survival following colorectal cancer? A prospective, cohort study using Iranian cancer registry
Background:The present study compared the differences between survivals of patients with colorectal cancer according to their ethnicity adjusted for other predictors of survival. Methods: In this prospective cohort study patients were followed up from definite diagnosis of colorectal cancer to death. Totally, 2431 person-year follow-ups were undertaken for 1127 colorectal cancer patients on...
متن کاملنظام ثبت سرطان بیمارستانی در ایران و مقایسه آن با آمریکا
Introduction: Cancer research is one of the essential activities for its control and treatment. Hospital based cancer registry system is an information system designed to collect, organize and analyze data on cancer. The objective of the present study was to compare hospital based cancer registry system in Iran with that in the USA. Methods: This research was a comparative study. Studied popul...
متن کاملCharacteristics and outcomes of patients with multiple myeloma : Data from a developing country
Background: Multiple myeloma (MM) is a plasma cell disorder characterized by presence of monoclonal protein in serum or urine or both, increased bone marrow plasma cells, osteolytic lesion, hypercalcemia, and anemia. Several combination regimens are commonly recommended for treatment of multiple myeloma. The present study aimed at determining the characteristics and outcomes of patients with mu...
متن کاملTrend of Breast Cancer Incidence in Iran During A Fifteen-Year Interval According To National Cancer Registry Reports
Introduction: Breast cancer is the most common cancer and cause of cancer-related death in women. Recent years have witnessed dramatic changes in the incidence and mortality rates of breast cancer. Therefore, this study aimed to provide a report of breast cancer incidence trends between 2003 and 2017. Methods: This cross-sectional study examined Iran’s cancer registry reports from 2003 to 2017...
متن کاملThe Survival and Incidence Rate of Ewing Sarcoma; a National Population-based Study in Iran (2008-2015)
Background: The effect of race and ethnicity on some kind of malignant bone tumors including Ewing sarcomahas been proven in different studies. In order to evaluate the latter, national cancer registries may help to increaseunderstanding about potential cancer causes, prevention and control strategies, and apply these findings to controlhealth problems among populations with s...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
عنوان ژورنال:
دوره 3 شماره
صفحات -
تاریخ انتشار 2011